Thursday, 10 July 2014

Medication Update

So I went to the doctors earlier this week, and the GP I saw there was actually lovely- she really listened to me and treated me with respect and sympathy, but most of all she did what I asked her to! I’ve been getting a lot more seizures recently, and so I was looking into what other ME patients used to control their fits and came across a drug called Gabapentin. It is an antiepileptic which put me off to begin with because I don’t have epilepsy, however it is used to control nerve pain and migraines as well as seizures, and as I struggle with all three, it seemed logical to suggest it to the doctor.


I was really nervous about going to the doctors, because I’ve had so many bad experiences of horrible GPs that didn’t listen to me or were dismissive and abrupt, but as soon as I hobbled into the room she set me at ease. We talked a bit about my medical history and current medications, and then she agreed that Gabapentin was the best way forward. There are some other medications I’d like to try to control some of my other symptoms, but the GP suggested that we try one new thing at a time, or we won’t know what’s working on what!

So, as of today, my medications are as follows:

Beclametasone Dipropionate Easi-Breathe CFC Free Inhaler 100 micrograms per actuation. Two puffs twice daily.
This is my asthma preventer inhaler. I use the easi-breathe variety because sometimes it hurts my hands too much to press the cartridge or normal inhalers down.

Salbutamol Sulphate Easi-Breathe CFC Free Inhaler 100 micrograms per actuation. Two puffs up to four times daily.
I’ve been having to use this a lot more recently, which suggests I need to have my preventer dosage increased, must book an asthma nurse appointment.

Co-dydramol 10/500mg tablets. For chronic pain. Two tablets four times a day.
This is for my pain, it controls it pretty well and the only notable side effect I have is constipation, which I don’t always get because of my IBS ish symptoms. I find this medication works much better than it’s cousin co-codamol.

Cyclizine 50mg tablets. For nausea. One tablet three times a day before meals.
I used to be on Metoclopramide for nausea and sickness, but apparently you’re not supposed to prescribe it to young people, so I’ve been changed back onto cyclizine. This is an anti-histamine used as an anti-emetic which I get on very well with, I take it about 30 minutes before each meal and it really helps me with keeping my food down.

Gabapentin 100mg tablets. For pain, migraines and seizures. One tablet three times a day.
I’ve literally just started on this tablet, and I’m supposed to increase my dosage by 100mg each dose after each week (eg. 100mg three times a day for a week, then 200mg three times a day for a week etc)

E45 cream. For itchy skin. Apply twice daily.
Been getting soooooo itchy recently, especially with this humidity. As my skin is so sensitive, it needs regular moisturising and E45 really does the trick!

Microgynon 30ED. For Period regulation. One tablet daily.
This stuff has very few side effects that I’ve noticed, though a friend of mine said she had mood swings on them, but I have those anyway so who knows!?

Kalms. For mental health. Two tablets three times a day.
I’ve switched to a herbal solution for my mental health and it’s worked wonders. Kalms are made up of hops, valerian and Gentian, they have no side effects and I’ve felt loads better since coming off my strong and nasty mental health drugs.

So yeah, that’s a fairly impressive list of meds. But they all do their job, and I’m hoping to try some new ones in the future, after I’ve gotten settled with my Gabapentin dosage.

Alley-Cat
xxxx

Be strong, even in the times where you feel like giving up, when it all feels too hard keep holding onto something, anything. If you have faith, cling onto God, if you have good family and friends, cling onto them, and if you feel you have nothing, cling on for me. I believe you can do it, and it will not be this bad forever, you’re still growing. Don’t try to be more than you are, stop striving for more and accept who you are today. Don’t even worry about tomorrow, because each day has enough worry of its own. Instead, focus on the small blessings that come with each day, and they will see you through to brighter days.

©Alice Daley 2014

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